A MIRACLE!

Henna was 2 years old when she was admitted to the hospital with a traumatic brain injury. She had been thrown against a concrete wall by her biological father for crying too long. She had two depressed skull fractures, old blood on the brain from previous abuse, a lacerated liver, collapsed lung, suspected sexual abuse, and shaken baby syndrome. Henna coded while on the way to the hospital via helicopter and was brought back to life only to go into surgery to relieve pressure on her brain. She was not expected to live through the night. Henna was in a coma for one month hanging on to life. Then the miracle happened! Henna woke up and was able to move all her limbs and speak, shocking all of the medical professionals. We took Henna into our home and shortly after her arrival she started having seizures.

Henna's journey continues as we try to control her seizures. She received the Vagus Nerve Stimulator (VNS) on Feb. 4, 2011 at Children's Hospital in Washington, DC. The VNS will send an electrical impulse to Henna's brain every 3 minutes for 30 seconds to interrupt her seizures. Over two months we have increased the electrical current and we have seen no change in her seizure activity. It looks as though Henna is in the third of children who receive a VNS that sees no relief from the VNS. We are very disappointed! We have started her on a new medication in addition to her current medications. Maybe it will help.

On August 6th, 2012, Henna had a full corpus callosotomy. This surgery is for people who have generalized seizures with no focal point. The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the spread of seizure impulses from one side of the brain to the other. A corpus callosotomy is an operation that severs (cuts) the corpus callosum, interrupting the spread of seizures from hemisphere to hemisphere. Seizures generally do not completely stop after this procedure (they continue on the side of the brain in which they originate). However, the seizures usually become less severe, as they cannot spread to the opposite side of the brain.

Henna received a white Labradoodle, Leo, from 4 Paws for Ability in Oct. 2010. We sent 4 Paws 2 shirts a week to help train her dog. One shirt was when Henna had a seizure and they used it for her dog to smell the chemical change during her seizure. The other shirt was when Henna had NOT had a seizure. This helped her dog differentiate between the two scents. It's a fascinating process. We trained for 10 day in Ohio with Leo and a trainer before bringing Leo home.

Leo had been going to school with Henna but started to bark and growl at different people when they came into her classroom. We worked with Leo's barking and growling when people would knock on the door and for a while he seemed better. He is very protective at home also. He then barked and growled at some boys who came into Henna's classroom and had to be removed from school. The trainer at 4 Paws said that some dogs bond so closely with their child that they become protective. Leo took on Henna's classroom as another home and felt he had to protect her. Sadly, because of his aggressive behavior, Leo can no longer be a service dog. The trainer said Leo would behave lthat way with any child he bonded to. Just his nature. We will keep Leo as a pet. Leo LOVES being just a pet. He still alerts to Henna's seizures and lives to get his hot dog reward!

Henna now has Snoball, a beautiful Golden Retriever. Snoball was born June 3, 2011. She is so sweet and a bundle of energy! Sno is doing an excellent job alerting to Henna's seizures BEFORE she has them! She is alerting up to one hour before Henna has a seizure. Sno goes to school with Henna and proudly wears her school ID badge. Snoball will be a great seizure alert dog and will serve Henna well.

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Friday, June 8, 2012

Dogs enlisted to aid veterans with PTSD harder to come by?



By Ivan Pierre Aguirre, for USA TODAY
Retired Army major Jimmy LaCaria takes a break with service dog Kaeci, who helps him cope with his debilitating PTSD.

Recently retired Army major James "Jimmy" LaCaria says he was afraid to leave his apartment before he got Kaeci, his 5-year-old mixed Australian Blue Heeler and Kelpi service dog

LaCaria, 36, from El Paso, was diagnosed in 2010 with post-traumatic stress disorder (PTSD) following combat tours in Iraq and Afghanistan. He had been in and out of inpatient psychiatric treatment facilities before his psychiatrist recommended he get a service dog to help him cope with the anxiety and nightmares caused by his debilitating condition.
"Even after getting psychiatric help, I was still afraid to go outside. I was afraid to go into public places or anyplace that had a crowd," LaCaria recalled. "With Kaeci, I'm able to do that. I can have more of a normal life."
An Army policy implemented in January, critics say, has made it harder for soldiers such as LaCaria who are suffering from PTSD and traumatic brain injuries to have specialized psychiatric service dogs on military posts.
Matt Kuntz, executive director of the Montana chapter of the National Alliance on Mental Illness, launched an online petition last month calling on Army Secretary John McHugh to revise it. "In our point of view, the need for basic regulation turned into a mountain of red tape," Kuntz said.
The policy was implemented shortly after a 6-year-old boy in Kentucky was fatally mauled by a German shepherd trained to help a soldier at Fort Campbell cope with PTSD. The incident happened away from the post. Before January, service dogs were allowed on Army posts under the Americans with Disabilities Act (ADA).
Now, service dogs must be provided by groups approved by Assistance Dogs International (ADI). ADI does not have chapters in 18 states, making the process of acquiring one in those states more difficult. The new policy also requires servicemembers to get approval of a care plan from their commander.
"Our policy is supportive of the use of service animals in treating physical disabilities as well as PTSD," said Maria Tolleson, a spokeswoman for the U.S. Army Medical Command (MEDCOM).
Kuntz's petition at change.org calls on the Army to make it clear that soldiers do not need to exhaust all other treatment methods before they can qualify for a service dog, and to ensure that soldiers with service dogs can have living quarters where they can keep their service dogs, and to broaden the definition of an accredited service animal provider beyond ADI.

By Ivan Pierre Aguirre, for USA TODAY
Jimmy LaCaria and Kaeci attend a group meeting at an El Paso hospital last month.
So far, 960 people have signed the petition.
"We believe that the Army's new policies are too restrictive," Kuntz said.
Kuntz, whose stepbrother committed suicide in 2007 after suffering from PTSD upon returning from Iraq, found out about the Army's new policy when LaCaria, a former classmate from the U.S. Military Academy, posted a despondent message on Facebook.
Kuntz said he feared LaCaria was suicidal after his commanders at Fort Bliss in Texas told him he could no longer keep Kaeci in barracks. LaCaria, who retired from the Army in May for medical reasons, said he spent the final weeks of his enlistment living in an on-base hotel at his own expense so he could keep Kaeci.
Sen. Jon Tester, D-Mont., a member of the Senate Veterans' Affairs Committee, last month sent a letter to McHugh urging the Army to change its new policy.
Lt. Gen. Patricia Horoho, surgeon general and commanding general of MEDCOM, responded in a June 1 letter saying that the Army "is committed to providing the highest level of care to all soldiers," but "has no studies underway to determine the efficacy of service dog use in the treatment of traumatic brain injury."
Tester replied in a June 4 letter urging the Army to conduct a study of the effectiveness of service dogs for soldiers with PTSD, saying he remains concerned "this innovative treatment strategy will be underutilized."
Rob Cain, public affairs chief for the Army surgeon general's office, said the Army's policy on the use of animals in the health care setting is under review by the surgeon general's office. Cain said the current policy is supportive of the use of service animals in treating physical disabilities as well as PTSD.
"This new policy places only minimal requirements on the active-duty soldier in procuring the animal, and has established additional pathways towards animal accreditation and procurement," Cain wrote. MEDCOM "remains firmly committed to the employment of any and all safe and effective adjunct therapies … in the treatment of our wounded warriors."
Congress is considering legislation that would create a pilot program for training dogs as a form of therapy for veterans suffering from various conditions. The measure, sponsored by Rep. Michael Grimm, R-N.Y., and Sen. Max Baucus, D-Mont., passed the House as part of a veterans' bill last fall. It's pending in the Senate.
Adams also reports for the Great Falls Tribune. Contributing: Malia Rulon, Gannett Washington Bureau; the Associated Press.

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