School news.

Henna is adjusting well in school. She had her first high school picture taken yesterday and it was so cute! She wore her hair down with a headband. Sno had her picture taken too! She'll be in the yearbook. Sno kept going
into a "down" when I tried to get her to sit and pose for the picture. She's so used to being in a down that she assumes that position automatically.

So the latest on the designated aide saga. The county has FINALLY approved a designated aide for Henna. This has taken only 3 months, 2 doctor's letters, and me being in Henna's classroom with her and Sno for the last 3 weeks. Unbelievable! Apparently their budget is more important than Henna's safety. Henna is still having seizures. We were told that the school was ok with the aide handling Sno but now the Principal wants the approval of the Dept. of Special Education. What next?? We have informed the school if Sno can't be handled by the aide we will pull Henna from school and request a home bound teacher. Sno is a piece of medical equipment in Henna's IEP. Just like a child with a wheelchair. You wouldn't take the chair from that student and Sno shouldn't be separated from Henna. I have been so frustrated!

In school I am having Sno "check" Henna 2-3 times a day. She goes up to hear a smells her mouth. If Sno detects a seizure she licks Henna's mouth and doesn't stop. Every time she has checked Henna she has alerted. Henna's seizures are so short now they are hard to detect and catch. I believe she is having more than we see. I have seen about 6 daily at school and more at home. At least she isn't dropping which was what we were hoping the surgery would take care of of and it has so far.

Chris and I have Sno today and we are off to a CFC Charity Fair where we wl represent 4 Paws for Ability at the National Oceanic and Atmospheric Administration. This is Sno's first event. Leo has attended a few. When Henna got on the bus Sno was very confused as to why she wasn't going with her.

Have a great weekend. Fall is here!

Blessings,
Jan