A MIRACLE!

Henna was 2 years old when she was admitted to the hospital with a traumatic brain injury. She had been thrown against a concrete wall by her biological father for crying too long. She had two depressed skull fractures, old blood on the brain from previous abuse, a lacerated liver, collapsed lung, suspected sexual abuse, and shaken baby syndrome. Henna coded while on the way to the hospital via helicopter and was brought back to life only to go into surgery to relieve pressure on her brain. She was not expected to live through the night. Henna was in a coma for one month hanging on to life. Then the miracle happened! Henna woke up and was able to move all her limbs and speak, shocking all of the medical professionals. We took Henna into our home and shortly after her arrival she started having seizures.

Henna's journey continues as we try to control her seizures. She received the Vagus Nerve Stimulator (VNS) on Feb. 4, 2011 at Children's Hospital in Washington, DC. The VNS will send an electrical impulse to Henna's brain every 3 minutes for 30 seconds to interrupt her seizures. Over two months we have increased the electrical current and we have seen no change in her seizure activity. It looks as though Henna is in the third of children who receive a VNS that sees no relief from the VNS. We are very disappointed! We have started her on a new medication in addition to her current medications. Maybe it will help.

On August 6th, 2012, Henna had a full corpus callosotomy. This surgery is for people who have generalized seizures with no focal point. The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the spread of seizure impulses from one side of the brain to the other. A corpus callosotomy is an operation that severs (cuts) the corpus callosum, interrupting the spread of seizures from hemisphere to hemisphere. Seizures generally do not completely stop after this procedure (they continue on the side of the brain in which they originate). However, the seizures usually become less severe, as they cannot spread to the opposite side of the brain.

Henna received a white Labradoodle, Leo, from 4 Paws for Ability in Oct. 2010. We sent 4 Paws 2 shirts a week to help train her dog. One shirt was when Henna had a seizure and they used it for her dog to smell the chemical change during her seizure. The other shirt was when Henna had NOT had a seizure. This helped her dog differentiate between the two scents. It's a fascinating process. We trained for 10 day in Ohio with Leo and a trainer before bringing Leo home.

Leo had been going to school with Henna but started to bark and growl at different people when they came into her classroom. We worked with Leo's barking and growling when people would knock on the door and for a while he seemed better. He is very protective at home also. He then barked and growled at some boys who came into Henna's classroom and had to be removed from school. The trainer at 4 Paws said that some dogs bond so closely with their child that they become protective. Leo took on Henna's classroom as another home and felt he had to protect her. Sadly, because of his aggressive behavior, Leo can no longer be a service dog. The trainer said Leo would behave lthat way with any child he bonded to. Just his nature. We will keep Leo as a pet. Leo LOVES being just a pet. He still alerts to Henna's seizures and lives to get his hot dog reward!

Henna now has Snoball, a beautiful Golden Retriever. Snoball was born June 3, 2011. She is so sweet and a bundle of energy! Sno is doing an excellent job alerting to Henna's seizures BEFORE she has them! She is alerting up to one hour before Henna has a seizure. Sno goes to school with Henna and proudly wears her school ID badge. Snoball will be a great seizure alert dog and will serve Henna well.

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Friday, July 29, 2011

Myrtle Beach fun!

Henna LOVES the ocean!  She would go out to the waves and throw herself in, flopping and twisting, then she'd come up giggling and happy.  We would alternate the beach and then go to the pool.  When they got tired of that they would sit in the hot tub.  I think Henna would stay in the ocean given her choice.  There's something about the sand under your feet and the waves hitting your body.
 Carter and Henna going back in.  Carter actually started swimming this vacation.  She is over being afraid of the water in her face.  Great milestone!

 They had a lazy river that Henna could do without.  After being in the ocean nothing compares.
Henna with her nephew, Elijah, and niece, Carter.
Adam brought sparklers that the kids enjoyed one night.  The wind was really blowing so we had to watch where they were swinging there arms.
Henna's "autistic flare"
On the way back out to the waves...

Henna did well for most of the vacation.  On the 26th, our 31st anniversary, she had a Grand Mal early in the morning.  I wish Chris could have made the vacation but he was stuck overseas in a typhoon.  Henna was in Mica's room and Carter heard her crying.   She was still out of it once Mica brought her to me.  She had some small seizures and then I was able to get her back to sleep.  We spent most of the day inside so she wouldn't heat up.  She had a slight temp which might have brought on her seizures.  By the end of the day Henna was feeling better so we went to the beach for an evening swim. 
One rainy day we went and saw Winnie the Pooh at a local cinema.  Our son, Adam, his wife Becky, and boys Elijah and Levi had a wonderful time too.  Mica was so helpful with Henna so I was able to get a lot of rest.

I hope everyone is enjoying the hot summer.  Thanks for taking the time to keep up with Henna!

Jan



Posted by Jan at 6:58 PM

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